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   NORTH CAROLINA SICKLE CELL SYNDROME PROGRAM

Providing HOPE For A Brighter FUTURE

Photo: African American FamilyNorth Carolina Sickle Cell Syndrome Program was established in 1973. The program is part of the Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section of the Women's Health Branch, and offers comprehensive services for individuals and their families affected by the disease, as well as, education and genetic counseling for the general public.

NC Sickle Cell Syndrome Program LogoNorth Carolina Sickle Cell Syndrome Program is committed to providing quality care and services through its system of Regional Sickle Cell Educator/Counselors, comprehensive medical centers and community-based organizations.* The program works closely with the Governor’s appointed Council on Sickle Cell Syndrome to address the changing needs and issues of the sickle cell community. By working together, these organizations "Bring Hope and a Brighter Future" to persons living with sickle cell disease and their families.

The mission of the program is to promote the health and well-being of persons with sickle cell disease through the reduction of morbidity and mortality and the heightened awareness of the disease and its complications. The North Carolina Sickle Cell Syndrome Program services includes:
Education
  • Patient and Family education
  • Training for health and human services professionals
  • Statewide public education for schools, churches, civic groups, etc.

Services & Care Coordination

  • Follow-up for clients with sickle cell disease throughout the life cycle
  • Consultation with health and human services professionals
  • Referrals to support groups, medical centers, and other agencies
  • Education and employment intervention
  • Psychosocial services

Screening

Medical Centers

  • Medical treatment
  • Physician and medical provider training
  • Consultations
  • Community Clinics
  • Access to national research studies

Counseling

  • Genetic counseling services for persons and their families identified with:
    • Sickle cell disease
    • Sickle cell trait (carrier)
    • Other types of abnormal hemoglobins
       

Payment Program

 
Organizational Information

 
 

 

NC Sickle Cell Syndrome Program Logo Home | Site Map | Privacy Policy | Disclaimer | Contact Us |  NC Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section of the Women's Health Branch  -  Revised January 20, 2007